Comments on: Psychiatry Eponyms: Alice in Wonderland Syndrome

By: Melissa

Melissa — Sat, 04 Feb 2012 03:11:38 +0000

Jennifer, I got no help from medical doctors for my son. Naturopath doctors are much more open to the dangers of mercury. I learned his mercury exposure opened the doors to him being more susceptible to fungi. I treated him naturally to detox from mercury. He was then treated naturally for crypto-fungus in the brain and his symptoms went away. I hope you can help him find relief. My niece had AIWS as a child and now suffers migraines which begin with the aura you speak of.

By: Jennifer

Jennifer — Thu, 02 Feb 2012 19:43:55 +0000

My son who is 21 is now telling me he experiences AIWS and has since a young teen. The doctor seems to think it could be a chemical imbalance. Cant you blood test for that. I have also read info on silent migraines that speak of the aura stage as being AIWS like.

By: Melissa

Melissa — Wed, 26 Oct 2011 15:55:34 +0000

Julia, I am so sorry to hear your symptoms have returned. That is alot of mercury in your mouth. I wonder if you looked back to your childhood and when you started getting mercury fillings if there would be a correlation to the onset of the episodes. My son’s reactions started after he had several immunizations (mercury) and a fluorescent bulb (mercury) was broken in our home. I hope you find some answers. Cilantro is great for detoxing from mercury and there are many homeopathics that help with that, as well.

By: Julia

Julia — Wed, 26 Oct 2011 00:53:54 +0000

I suffered with AIW through out my childhood years, and well into my adolescence. I believe taht my last episodes were in my early 20’s. IIn retrospect, my parents had a lot of heart ache for me, becasue at times I would scream and cry becasue the condition was so debilitating. I was sent to many doctors, but no body was able to explain my condition. I am now 39, and I am currently going through some other unexplained symptoms such as a racing heart and dizziness, and for the first time in almost 20 years, I re-experienced AIW. Is it stress related? I also have over 18 mercury fillings on my teeth, is it mercury? In hind site I also suffered from a lot of leg pain, but I never suffered any trauma or any form of abuse in my childhood. I have three children and fortunately, they do not suffer from AIW, so maybe it is not genetic. It is wonderful for me to find a site taht explores this syndrom, to know that I am not alone is a great comfort to me.

By: Melissa

Melissa — Wed, 27 Jul 2011 21:59:44 +0000

After much study I am highly convinced that these episodes are related to mercury in the brain. Lewis Carroll who wrote AIW had these episodes and grew up around mercury. I believe it was his father who was a hatter. Hatters used mercury in making their hats (thus,the Mad Hatter). I was able to clear my son of AIWS by naturopathic and homeopathic means. Sorry to hear of your suffering, Mike. I suggest you find a naturopath to help you.

By: MikeBing

MikeBing — Wed, 27 Jul 2011 04:37:17 +0000

Suffered from AIWS as a child. I am 31 and it is suddenly back. This is almost a debilitating illness (how else do I describe it?). It is terrifying when an ‘attack’ comes on. I try to control it by telling myself I can, but it’s impossible. What’s weird is it is EXACTLY the same as when I was a child. I feel huge and everything I touch is tiny and fragile. Everything is moving fast around me, I even tell yelled at my wife to slow down as she walked to get me a drink. She refuses to talk to me when these attacks happen, she thinks I’m playing a joke on her but she doesn’t understand. I wish someone could help.

By: Melissa

Melissa — Wed, 04 Nov 2009 02:23:42 +0000

I have also been told by a naturopath that these are symptoms of mercury in the brain.

By: Melissa

Melissa — Wed, 04 Nov 2009 02:22:15 +0000

My son started these Alice in Wonderland episodes last spring. I have held off on vaccinating my kids until they were a little older and their immune systems were developed. He started having episodes where everything looked “small” and had 3 such occurences over a 3 week period just after his first vaccines at age 5. We had a clean brain MRI, and 2 EEG’s that showed a propensity for seizures. No episodes all summer, then this September he began to have increasingly frequent and longer episodes–sometimes several in a day that would leave him napping. He finds it funny, but I know he is scared. He also complains that his legs hurt afterwards. He just completed a 24-hour EEG and we hope to find some answers. I find almost nothing like this when searching online.

By: PiddlyD

PiddlyD — Fri, 10 Jul 2009 19:39:23 +0000

I can’t believe that there are heatlhcare professionals who have never encountered case descriptions of this phenomenon. Once, playing Dungeons and Dragons as a teenager, high on weed and cocaine, and also drunk, looking down at a map spread out on a kitchen table, I felt *huge*… The feeling is very hard to describe, but my sense of proportion was completely out of wack. The first time I heard of macrocopia, as applied to Alice in Wonderland, it made perfect sense to me, though, having experienced the sensation myself, first hand. As an adult, coincidently, I suffer from occasional but severe migraines.

By: AIWS Sufferer

AIWS Sufferer — Thu, 19 Mar 2009 23:03:24 +0000

I’m an AIWS sufferer and have just started a blog.

http://thisshrinkingworld.blogspot.com/